Polycythemia Vera--Current Research
 
 

General Articles

 

http://mpdfoundation.org/webarticle.htm A safe treatment for PV may be coming very soon!!!
It's big news! This is truly a major discovery that gives all MPD patients a great deal to be thankful for. The optimum result will be a drug that targets the JAK2 mutation, just as Gleevec targets the tyrosine kinase responsible for CML. That would mean better control of our counts, fewer side effects and healthier, longer lives . . .
The first news came out on March 17, 2005: A team of researchers at the Cambridge Institute for Medical Research, UK, led by Dr. Tony Green, announced that they had discovered a single point mutation in the JAK2 gene that appeared in 97% of polycythemia vera patients they studied . . .
Discoveries Reveal Gene Mutation That Causes Blood Disorders
ATLANTA, Dec. 11 /PRNewswire/
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Several members of the American Society of Hematology (ASH) have discovered a single point mutation in the JAK2 gene that is expressed in a high percentage of patients with one of three myeloproliferative diseases. The discovery of this mutation may lead to the development of a targeted therapy to combat these disorders.
Myeloproliferative diseases (MPDs) are a closely related group of blood disorders characterized by excessive production or dysfunction of blood cells. The three main MPDs are polycythemia vera, essential thrombocythemia, and idiopathic myelofibrosis. The actual incidence of MPDs is difficult to measure, but the most complete statistics to date estimate that they affect 4.7 people out of every 100,000. There is currently no known cure for MPDs.
Polycythemia vera is characterized by an increase in the number of red blood cells, often accompanied by an elevated white blood cell count, an elevated platelet count, an enlarged spleen, and a propensity to develop pathological thrombosis. Essential thrombocythemia is characterized by a proliferation of megakaryocytes in the bone marrow, leading to an increased number of circulating platelets and a similar tendency to develop abnormal blood clotting. Idiopathic myelofibrosis is a disorder in which too few red blood cells, white blood cells, and platelets are made resulting from abnormal growth of fibrous tissue within the marrow due to abnormalities of the blood- forming cells. Kenneth Kaushansky, M.D., professor and chair of the Department of Medicine at the University of California, San Diego, will lead a special plenary session on the origins and effects of these JAK2 disorders at the 47th Annual Meeting of ASH. The ASH annual meeting is the world's largest gathering of hematologists, the specialists who treat blood diseases and disorders.
"There has been an explosion of new knowledge beginning with the discovery earlier this year of the role of the JAK2 V617F mutation in polycythemia vera, myelofibrosis, and essential thrombocythemia, providing novel insight into the molecular basis of pathological myeloproliferation," said Dr. Kaushansky. "Because this discovery reveals key information about the pathophysiology of MPDs, it was decided that the issue should be discussed before all attendees of the ASH annual meeting."
JAK2 is a protein tyrosine kinase, an enzyme that adds a phosphate group to numerous cellular proteins involved in transmitting growth signals that trigger the production of blood cells. The V617F mutation causes the constitutive activation of these molecular signaling pathways, leading to the uncontrolled cell proliferation for which the myeloproliferative disorders are named. Abnormal regulation or function of tyrosine kinases have been implicated in many cancers, including chronic myelogenous leukemia (CML), the treatment of which was revolutionized with the discovery of imatinib mesylate (commonly known as Gleevec). Imatinib mesylate targets the tyrosine kinase responsible for the abnormal proliferation of white blood cells that characterizes this disease.
Several abstracts scheduled for presentation during the ASH annual meeting examine the JAK2 discovery. A research team led by Anthony Green, M.D., of Cambridge University (Abstract 253) noted that the JAK2 mutation occurs in most patients with polycythemia vera, but only half of those with essential thrombocythemia and idiopathic myelofibrosis. Dr. Green's analysis revealed JAK2 mutation status divided essential thrombocythemia into two biologically distinct subtypes with those patients carrying the V617F mutation having disease characteristics that closely resembled polycythemia vera.
"Our results suggest that V617F-positive essential thrombocythemia and polycythemia vera are closely related and have major implications for the classification, diagnosis, and management of MPDs," according to Dr. Green. Abstract 253 will be presented on Monday, December 12, 2005, at 7:30 a.m. ET.
Researchers from the Mayo Clinic and Dana-Farber Cancer Institute (Abstract 254) also examined the relationship between essential thrombocythemia and polycythemia vera relating to the JAK2 mutation. Essential thrombocythemia patients with the V617F mutation had disease characteristics commonly associated with polycythemia vera, but they were unsure whether that was relevant when selecting the best treatment option. Abstract 254 will be presented on Monday, December 12, 2005, at 7:45 a.m. ET.
"More research needs to be completed, but we may be on the brink of developing targeted therapies to treat MPDs," says Dr. Kaushansky. "The identification of a potential molecular target is a major discovery that may one day benefit patients, but not all MPD patients have the JAK2 mutation. Researchers are continuing to look for other mutations that may be associated with MPDs. It is hoped that open discussion of new findings and remaining questions will spur additional insights into the origins and control of these disorders."
Dr. Kaushansky will moderate a plenary session titled "Myeloproliferative Diseases Revealed: The Molecular Basis and Potential for Targeted Therapy of Polycythemia Vera, Idiopathic Myelofibrosis, and Essential Thrombocythemia" on Sunday, December 11, from 1:45 - 2:45 p.m. ET. To arrange an interview with Dr. Kaushansky, please call the ASH Media Room at 404-222-5705.

The American Society of Hematology (http://www.hematology.org) is the world's largest professional society concerned with the causes and treatment of blood disorders. Its mission is to further the understanding, diagnosis, treatment, and prevention of disorders affecting blood, bone marrow, and the immunologic, hemostatic, and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology. SOURCE American Society of Hematology -------------------------------------------------------------------------------- Related links: http://www.hematology.org -------------------------------------------------------------------------------- Issuers of news releases and not PR Newswire are solely responsible for the accuracy of the content. Terms and conditions, including restrictions on redistribution, apply. Copyright © 1996-2006 PR Newswire Association LLC. All Rights Reserved. A United Business Media company.

 

Spivak2003 article: Here is a very technical but up-to-date and comprehensive article summarizing much of the most current PV research . . . A must read for your doctor. Below are some important highlights of the article.
Phlebotomy to reduce the red cell mass and keep it at a safe level (hematocrit < 45%) remains the cornerstone of treatment. Venesection is an effective and safe therapy and previous concerns about potential side effects, including severe iron deficiency and an increased tendency to thrombosis or myelofibrosis, were erroneous. Many patients require no other therapy for many years. For others, however, poor compliance to phlebotomy or progressive myeloproliferation, as indicated by increasing splenomegaly or very high leukocyte or platelet counts, may call for the introduction of cytoreductive drugs. In ET, the therapeutic trade-off between reducing thrombotic events and increasing the risk of leukemia with the use of cytoreductive drugs should be approached by patient risk stratification. Thrombotic deaths seem very rare in low-risk ET subjects and there are no data indicating that fatalities can be prevented by starting cytoreductive drugs early. Therefore, withholding chemotherapy might be justifiable in young, asymptomatic ET patients with a platelet count below 1,500,000/mm3 and with no additional risk factors for thrombosis.
Aspirin treatment lowered the risk of cardiovascular death, non-fatal myocardial infarction, and non-fatal stroke (relative risk 0.41 [95% CI 0.15–1.15], P = .0912). Total and cardiovascular mortality were also reduced by 46% and 59%, respectively. Major bleedings were slightly increased nonsignificantly by aspirin.
Oct 30,2005

 
http://racinnews.com/mpd.htm The Harvard study, MPD Foundation and friends of ET! You can get their info off my site, the link is in my sig. Sue. This site contains information and links to: Primary polycythemia ("vera") vs Secondary polycythemia, Diagnosis and Causes - Written so YOU can read and understand it! Participating in the The Harvard MPD Study Acronyms Oct 30,2005
 
http://mpdfoundation.org/index.htm The MPD Foundation is a not-for-profit organization whose primary mission is to fund original medical research for Myeloproliferative disorders. These are progressive hematological malignancies that can strike anyone at any age, and for which there is no known cure. They include polycythemia vera (PV), myelofibrosis (MF), and essential thrombocythemia (ET). Oct 30, 2005
 
Besa, E.C. eMedicine Polycythemia Vera--http://www.emedicine.com/med/topic1864.htm (this description is of the April 8, 2002 version of this web page). An informative overview of the condition. Includes: Introduction, Clinical (history, physical, causes), workup (lab studies, imaging studies, other tests), Treatment, Medication (Hydroxyurea, Anagrelide hydrochloride, Recombinant alpha2a), Prognosis (10-20 years), Pictures, Bibliography.
 
http://www.bloodjournal.org/cgi/reprint/37/2/172.pdf A very technicle research article that shows there is a higher incidence of PV among Jews. It is a bit dated, but the publication ‘Blood’ is highly regarded in hematological circles I believe. Nelson Kennedy Christchurch, New Zealand nelson@213.co.nz
 
This page will contain links to current articles, the most current at the top, with a description of the article and the findings in the article in plain English.